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1.
In order to develop more effective ways of helping adolescents and young adult (AYA) cancer survivors cope with cancer-related uncertainty, it is important to understand how AYAs respond communicatively to each other's uncertainty. We designed this project to gain insight into the patterns of social support that occur in response to AYAs' expressions of uncertainty. We analyzed 510 responses to posts in an AYA-focused online discussion group. Eighty-two percent of messages responding to uncertainty contained informational support. Sixty-seven percent contained multiple types of support. Among medical, personal, and social sources of uncertainty, the most typical response tended to be a combination of informational support accompanied by emotional and/or esteem support. AYAs who express uncertainty in online support groups should be advised that their posts are likely to be met with information, such as advice and referrals, which may either facilitate or impede their uncertainty management goals.  相似文献   

2.
ABSTRACT

This paper discusses the use of online learning communities for library professional organizations to promote collaboration and learning. The addition of an online learning community component to a library organization expands collaborative and educational opportunities for members through a virtual environment. Although technologies used to support learning communities vary, standard features include a discussion forum, file-sharing capability, and chat functionality. More sophisticated sites provide Webcasts, podcasts, online courses, and databases. Moreover, the availability of file sharing and chat supports virtual meetings. Studies of library-oriented learning communities illustrate their effectiveness in using discussion forums and resources to foster collaboration and learning opportunities among members. This research also notes the role of discussion forums in decreasing feelings of isolation among users. Moreover, these articles highlight the member's participation in library learning communities through postings to discussion forums, selecting learning events, and contributing materials. The first step in creating a learning community centers on the administration of a needs assessment to the members. These evaluations identify the goals of the learning community and aid in the selection of appropriate technologies. In addition, learning community organizers need to develop an action plan that outlines a timeline for the project's implementation. Moreover, organizers should consider providing incentives and training to members to enhance their participation in the project. Finally, promotional and evaluation efforts are needed to sustain the growth of a learning community.  相似文献   

3.
在线健康社区用户个人健康信息管理行为特征研究   总被引:3,自引:1,他引:2  
[目的/意义] 旨在对在线健康社区用户的个人健康信息管理行为特征进行分析,并在此基础上,对"平台-PHIM-健康目标"这一模式中的元素之间的关系进行探讨。[方法/过程] 选择患有红斑狼疮的在线健康社区用户作为调查对象。采用聚类方法对个人健康信息管理行为的总体测度水平不同的群体进行识别;利用单因素方差分析(One-way ANOVA)对不同群组进行比较研究。[结果/结论] 将依托在线健康社区进行的个人健康信息管理行为界定为健康信息发现、健康信息互动和健康信息分享。从数据分析结果来看,首先,在线健康社区的红斑狼疮患者在个人健康信息管理行为水平上存在显著的高低差异。第二,用户所感知到的社会支持与其个人健康信息管理水平存在正相关关系。第三,个人健康信息管理与用户健康目标之间存在正相关关系。本研究为在线健康社区完善其服务方式,促进慢性病人个人健康信息管理水平提高提供合理建议。  相似文献   

4.
梳理研究不动产登记档案信息面临的安全风险对于保障社会稳定和国家安全具有重要意义。其安全风险主要来自管理制度、数据本身和技术环境三个方面:不动产登记职责整合带来的不良影响,包括档案工作未受到应有重视、归档范围不明确、档案整理不及时,以及系统转换和数据整合对数据的影响等;不动产登记档案数据包括空间信息和公民个人信息,导致其风险系数较高;网络和信息技术的应用,使不动产登记档案电子数据在网上服务、信息共享、数据存储过程中面临安全风险。  相似文献   

5.

Objective:

A discourse analysis was conducted of peer-written blogs about the chronic illness endometriosis to understand how bloggers present information sources and make cases for and against the authority of those sources.

Methods:

Eleven blogs that were authored by endometriosis patients and focused exclusively or primarily on the authors'' experiences with endometriosis were selected. After selecting segments in which the bloggers invoked forms of knowledge and sources of evidence, the text was discursively analyzed to reveal how bloggers establish and dispute the authority of the sources they invoke.

Results:

When discussing and refuting authority, the bloggers invoked many sources of evidence, including experiential, peer-provided, biomedical, and intuitive ones. Additionally, they made and disputed claims of cognitive authority via two interpretive repertoires: a concern about the role and interests of the pharmaceutical industry and an understanding of endometriosis as extremely idiosyncratic. Affective authority of information sources was also identified, which presented as social context, situational similarity, or aesthetic or spiritual factors.

Conclusions:

Endometriosis patients may find informational value in blogs, especially for affective support and epistemic experience. Traditional notions of authority might need to be revised for the online environment. Guidelines for evaluating the authority of consumer health information, informed by established readers'' advisory practices, are suggested.

Highlights

  • Endometriosis patients who blog about the illness may determine authority of information sources through both cognitive and affective methods.

Implications

  • Because patients with chronic illnesses might have different authority criteria than medical librarians do, it could be useful to carefully incorporate electronic patient discussion forums, medical blogs written by laypeople, and other nontraditionally authoritative resources into consumer health information selection policies. Standard biomedical resources are certainly important to recommend to consumers, but they do not convey the complete picture of a chronic illness and its related experience.
  • Patients with chronic illnesses and caregivers can benefit from sources such as blogs and online discussion lists that provide social and emotional support as well as accounts of “lived experience.”
  • An understanding of the patient''s potential epistemological community can make the librarian''s recommendations more appropriate for the individual user.
  相似文献   

6.
This study draws on survey data obtained from members in neo-Nazi discussion forums and builds on evidence that participation in these forums exacerbates false consensus, that is, overestimating public support for own views. This study goes further to test whether contacts with dissimilar offline social networks as well as exposure to ideologically dissimilar news media attenuate false consensus and its association with online participation. Contrary to predictions, politically dissimilar networks do not reduce false consensus among the analyzed sample. Exposure to ideologically dissimilar news media, on the other hand, results in more accurate estimates (main effect), but it exacerbates false consensus as resulting from participation in neo-Nazi online groups (interactive effect). Theoretical and practical implications are discussed.  相似文献   

7.
Online programming discussion forums have grown increasingly and formed sizable repositories of problem-solving solutions. In this paper, we investigate programming learners’ information seeking behaviors in online discussion forums, and provide visual navigational support to facilitate information seeking. We design engines to collect students’ information seeking behaviors, and model these behaviors with sequence pattern mining techniques. The results show that programming learners indeed seek for information from discussion forums by actively search and read progressively according to course schedule topics. Advanced students consistently perform query refinements, examine search results and commit to read, however, novices do not. Finally, according to the lessons learned, we propose, design and evaluate Personalized Information Seeking Assistant system to help query refinement by summarizing the search results and to provide social-based browsing history. Findings suggest that paying attention to the query history may lead to further reading events, which subsequently resulting in potential learning activities.  相似文献   

8.
Online communities are valuable information sources where knowledge is accumulated by interactions between people. Search services provided by online community sites such as forums are often, however, quite poor. To address this, we investigate retrieval techniques that exploit the hierarchical thread structures in community sites. Since these structures are sometimes not explicit or accurately annotated, we introduce structure discovery techniques that use a variety of features to model relations between posts. We then make use of thread structures in retrieval experiments with two online forums and one email archive. Our results show that using thread structures that have been accurately annotated can lead to significant improvements in retrieval performance compared to strong baselines.  相似文献   

9.
The 2016 U.S. presidential election saw social media continue to play an important role in citizens’ political engagement. This study examines the effect of seeing social media political post sharing on individuals’ own political post sharing. Results from a two-wave survey suggest the interplay within the network is important. Seeing others share political posts and perceiving posts were biased towards a candidate predicted sharing political posts.  相似文献   

10.
老年人网络健康信息查寻行为影响因素研究   总被引:9,自引:4,他引:5  
[目的/意义] 探索网络环境下我国老年人健康信息查寻行为的影响因素,构建相关概念框架模型,为更合理化地开展老年人健康信息服务予以理论指引和支撑.[方法/过程]采用半结构访谈法收集35位老年人在网络环境下进行健康信息查寻活动的相关数据,通过扎根理论归纳出影响老年人网络健康信息查寻行为的14个概念范畴并聚焦为4个核心范畴.基于对概念范畴的分析,指出影响老年人网络健康信息查寻行为的4个主要因素,并构建网络健康信息查寻行为影响因素模型.[结果/结论]个人心理因素、个人实施成本、信息因素和社会因素是影响老年人网络健康信息查寻行为的主要因素.其中,个人心理因素和个人实施成本是内部因素,直接决定老年人网络健康信息查寻行为模式;信息因素、社会因素是外部情境条件,分别影响着内部因素与信息查寻行为之间的关系强度.  相似文献   

11.
ABSTRACT

This study introduces and evaluates the robustness of different volumetric, sentiment, and social network approaches to predict the elections in three Asian countries – Malaysia, India, and Pakistan from Twitter posts. We find that predictive power of social media performs well for India and Pakistan but is not effective for Malaysia. Overall, we find that it is useful to consider the recency of Twitter posts while using it to predict a real outcome, such as an election result. Sentiment information mined using machine learning models was the most accurate predictor of election outcomes. Social network information is stable despite sudden surges in political discussions, for e.g. around elections-related news events. Methods combining sentiment and volume information, or sentiment and social network information, are effective at predicting smaller vote shares, for e.g. vote shares in the case of independent candidates and regional parties. We conclude with a detailed discussion on the caveats of social media analysis for predicting real-world outcomes and recommendations for future work.  相似文献   

12.
ABSTRACT

Digital platforms such as search engines and social media have become major gateways to news. Algorithms are used to deliver news that is consistent with consumers’ preferences and individuals share news through their online social networks. This networked environment has resulted in growing uncertainty about online information which has had an impact on news industries globally. While it is well established that perceptions of trust in news found on social media or via search engines are lower than traditional news media, there has been less discussion about the impact of social media use on perceptions of trust in the news media more broadly. This study fills that gap by examining the influence of social media as news sources and pathways to news on perceptions of the level of news trust at a country level. A secondary data analysis of a 26-country survey in 2016 and 2019 was conducted. The analysis revealed an increase in social media use for accessing news resulted in a decline in trust in news media generally across the globe. Higher levels of general mistrust in news were related to an increased use of sharing of news. This paper argues the use of social media for news is closely linked to the increase in news mistrust, which is likely to continue to rise as the number of people using social media to access news continues to grow.  相似文献   

13.
[目的/意义] 探究网络健康社区知识共享的影响因素,对优化网络健康社区知识服务、促进健康知识的交流与传播具有重要意义。[方法/过程] 将网络健康社区中的知识划分为公共健康知识和个人健康知识,依据社会认知理论构建影响因素模型,并利用结构方程模型进行验证和分析。[结果/结论] 数据分析结果表明,自我效能、利他主义、社会信任、社会认同、感知有用性等变量与公共健康知识和个人健康知识共享行为都呈显著正相关,感知风险与公共健康知识共享行为无显著相关性,与个人健康知识共享行为呈显著负相关。  相似文献   

14.
Using an online survey (N = 888), this study investigated if the experience of flow mediated the influence of perceived social networking site credibility and social capital affinity (the sense of community and likeness felt for people online) on perceived focused and incidental knowledge gain among social networking sites users. The findings indicated that flow acted as a partial mediator in this context. However, social capital affinity strongly predicted perceived social networking site credibility and flow. Both perceived social networking site credibility and flow were predictors of perceived focused learning while social capital affinity was a strong, direct predictor of perceived incidental knowledge gain in this sample.  相似文献   

15.
Analyzing news stories, commentaries, and readers’ discussions of a sensational serial murder case on China's two most popular commercial online portals, this study examines how the Internet's medium-specific characteristics of unlimited space and interactivity facilitate both reinforcement and challenges to dominant ideologies of crime coverage. The study finds that news accounts on the two portals, Sina.com and Sohu.com, to a large degree favored the interests of the powerful over the powerless, excusing the inefficiency of the police and portraying causes of crime as individual; while readers contributing to online forums on the case voiced concern about social issues underlying crime, expressed standpoints of the poor and underprivileged, and questioned the authority and intentions of the powerful. The result was that, even as news accounts generally reinforced prevailing social relations, readers’ comments upturned them with analyses of inequality, poverty and discrimination. The study lends additional weight to the assertion that the Internet's unlimited space and allowance for simultaneous interactivity among many voices are leading to qualitative changes in public communications as well as quantitative increases in information flow. Even within the context of Chinese information control, online forums open up new options for users that we characterize as exegetical, implying broad possibilities for explanation and exposition as well as for alternative ideological renderings.  相似文献   

16.
Social networking on the Web has become very popular in recent years. Used by more than 950 million people worldwide, Facebook is one of the most popular of these services. One interesting aspect of Facebook is that users can converse through various formats, including wall posts, photographs, Web links, music, and video clips of stories and interests surrounding their daily lives. This phenomenon raises an important question for archivists in regard to personal history on the Web: What are the new ways that contemporary people document their life stories? This study looks at Facebook activities from the perspectives of personal documentation. Using an online survey, this study investigates how Facebook content presents users themselves and their everyday stories, whether they perceive their activities of using Facebook as personal documentation, and what factors influence such activities. The findings of this study show the current status of Facebook usage. Facebook content indeed indicates information of self-presentation and personal documentation of everyday lives of users. Attitudes about and activeness on Facebook are the major factors that influence self-presentation and personal documentation activities on Facebook. Generic external factors, such as personal archiving in general, do not show strong associations with personal documentation activities as factors. Based on this understanding, we discuss the roles of information professionals and cultural heritage institutions in dealing with a new type of personal record on the Web.  相似文献   

17.
[目的/意义]旨在探究线下社会资本水平不同的用户,在问答社区中累积的社会资本和问答社区行为是否存在差异。[方法/过程]以知乎网10个医学、健康类话题的6 927名用户为研究对象,借助职业声望、院校排名对其线下社会资本进行编码和排序,分析不同线下社会资本用户的线上社会资本积累和社区行为模式的特点。[结果/结论]部分线下社会资本如毕业院校名誉度与线上社会资本存在正向关联,但职业声望高低则与线上社会资本无关;线上结构性社会资本高的用户,其提问数量、专栏文章数量和关注人数较高,而线上认知性资本高的用户,其回答数量和专栏文章数量较高。这些结果有助于网站管理者识别、关注核心用户、优化用户激励制度,但样本用户为医学、健康话题参与者,结论普适性还有待验证。  相似文献   

18.
The cooperation and collegiality that can be a part of providing reference service bring joy to reference librarians fortunate enough to work in such an environment. This article examines the benefits one reference staff has found in attempting to maintain a collegial atmosphere. Collegiality contributes to building a positive daily environment, sharing responsibility for completion of special reference projects, and fostering professional and personal growth. By stressing cooperative efforts, reference staff members have broadened their skills in areas such as online searching and collection development. Librarians have increased their professional involvement through publication and conference participation. They have undertaken major cooperative efforts in projects such as weeding. Above all, they experience daily satisfaction in working with a team of professionals interested in providing quality reference service.  相似文献   

19.
This study examines the issue of who tends to speak out against the tide of opinions on an online discussion forum and which forum conditions facilitate an individual’s public expression of honest opinions. In response to the call for experimental research, this study employed simulated online forums to place participants in multifaceted hostile online discussion situations. The findings indicate that an individual’s race, issue involvement, issue knowledge, fear of isolation, and the revelation of identity influenced opinion expression online. In particular, fear of isolation, which has been pointed out as the main reason for silencing minority opinion holders, played an unexpected role as a motivator for frank expression of opinions online.  相似文献   

20.
论信息资源共享及其效率   总被引:55,自引:0,他引:55  
回顾了信息资源共享的沿革与发展 ,探讨了我国文献信息资源的布局状况 ;比较了垂直型、水平型和网络型 3种不同的共享模式 ,进而对网络环境下信息资源共享模式进行了阐述 ,对馆际互借、联机检索和网络检索的共享模式进行了社会收益成本分析。参考文献 5。  相似文献   

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