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1.
Meghan M. Burke Kristina Rios Marlene Garcia Linda Sandman Brenda Lopez Sandra Magaña 《Exceptionality》2019,27(3):201-214
Rapidly becoming the largest ethnic group of American students, compared to White students with disabilities, Latino students with disabilities receive less services and their parents are more likely to struggle to receive services. Yet, it is unclear how Latino families advocate for their children with disabilities including how cultural values facilitate their advocacy efforts. In this study, four focus groups were conducted with 46 Latino parents of children with autism spectrum disorder. Parents reported advocating by being assertive but not aggressive, being involved in school activities, communicating with the school and documenting the communication, and relying on knowledge and faith. Parents also reported facilitators (i.e., knowledge and resources, increased parent-school communication, and greater peer support) and barriers (i.e., poor school experiences, school related-stress, and stigma and discrimination) to advocacy. Implications for research, policy, and practice are discussed. 相似文献
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Although parents often advocate for the best educational services for their children with disabilities, few studies examine parents’ advocacy activities; identify parent-school relationship, parent, and student correlates of advocacy; or describe the conditions of advocacy. Responding to a national, web-based survey, 1087 parents of students with disabilities completed a 163-item questionnaire. A seven-item Special Education Rights and Advocacy Scale converged on a single factor. Higher levels of advocacy were found among parents who enacted their procedural safeguards, reported less satisfactory partnerships with schools, and were less satisfied with educational services. Parents engaging in the highest levels of advocacy described negative experiences, with schools refusing services, acting disingenuously, lacking trained personnel, and communicating poorly. Conversely (and with some exceptions), parents engaging in lesser amounts of advocacy reported positive experiences, were satisfied, and felt that their IEP teams were collaborative. High levels of parental advocacy may be a reaction to poor relationships with and behaviors by the school. Implications for researchers and practitioners are discussed. 相似文献
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本研究旨在了解北京市0-7岁残疾儿童家庭康复需求的状况,为政府部门建构残疾儿童康复服务支持体系提供参考建议,对133名北京市智力残疾、听力残疾、肢体残疾、精神残疾、多重残疾共5类残疾儿童家长进行问卷调查。结果发现残疾儿童家长对咨讯支持、经济支持和专业支持需求强烈,对服务支持和精神支持也有较强需求。残疾孩子的母亲对咨讯支持需求显著高于残疾孩子的父亲,40岁以上的被试对精神支持需求显著高于40岁以下的被试,残疾程度为重度（一级）的家庭对精神支持需求显著高于其他残疾程度儿童家庭。研究者认为北京市0-7岁残疾儿童家庭康复需求强烈,相关部门和机构应适时给予残疾儿童及其家庭适当的支持服务。 相似文献
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Across the world countries are advocating the education of children and young people with disabilities in mainstream schools. There is also increasing interest in developing effective coordination of the specialist services pupils with disabilities receive from different agencies. This is accompanied by growing recognition that such care coordination can positively influence the experience of inclusion for children and their families. However, while the literature of care coordination generally includes education as a core provider, there is little evidence on involvement of education professionals and the outcomes for children and schools. These issues are addressed by the findings reported here on the role of key workers in care coordination and their relationship with schools. The findings draw on interviews with professionals from seven key worker services across England and Wales, parents and carers who were recipients of these services and teachers in schools serving children supported by key workers. These interviews are part of a wider multi‐method study exploring the effectiveness and costs of different models of key worker services for disabled children. The data reveal the range of education and school issues addressed by key workers and the factors influencing their work with teachers. The benefits for children, families and schools of key worker involvement are identified and the implications for schools explored. Consideration is also given to the advantages and disadvantages of teachers themselves taking on the role of key workers. It is argued that key workers can improve home–school relationships, facilitate the contribution of teachers in inter‐agency working, enable mainstream schools to better meet the individual needs of pupils with disabilities and improve their inclusive practice. 相似文献
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Necdet Karasu 《欧洲特需教育杂志》2013,28(3):358-369
Active participation of parents in every step of their children with special needs’ education is crucial, and it begins with the educational assessment of the children. The parents experience with the professionals who are responsible of assessing children’s abilities might be crucial for the services that will be provided for the children with disabilities. The Guidance and Research Centers (GRCs) of Turkey are the key organisations for the services for children with special needs. This study focused on identifying the experience of the parents at the GRCs and applied qualitative research principles. The findings showed that the parents have reflected both positive and negative experience, but the majority focused on negative experiences. It might be drawn out that GRCs must be improved from several perspectives. 相似文献
7.
ABSTRACTHomeschooling is controversial for a variety of reasons. One concern is whether families are sufficiently equipped to serve students with disabilities. We investigate this issue by assessing parental satisfaction with the special education services that their child is receiving in various educational sectors (e.g., homeschool, traditional public, public charter, and private). Using a nationally representative sample of U.S. households from the National Household Education Survey, we find that parents who homeschool are more satisfied than parents of children in traditional public schools and a variety of private schools with the special education services that they are receiving. Despite obvious selection bias in our sample, we view parental satisfaction as one of many important indicators for the quality of special education services. The results from this study suggest that homeschooling is a potentially beneficial option for serving students with disabilities, though additional research examining other student outcomes would be invaluable. 相似文献
8.
Erin A. Siebert Jessica Hamm Joonkoo Yun 《International Journal of Disability, Development & Education》2017,64(4):378-390
The purpose of this study was to identify parental influences on physical activity behaviours of children with disabilities. One hundred and forty-eight parents of children with disabilities responded to a survey about factors related to parent and child physical activity, parental support and belief in their child’s abilities regarding physical activity. The results of multiple regression revealed that parents’ perceived competence of their child’s physical ability and parental support were the key factors of promoting physical activity behaviours of children with disabilities. Findings from this study should be utilised to inform parents on the ways that they can be most helpful for improving the physical activity experiences of their children. 相似文献
9.
Schooling of children with disabilities has become an important development agenda, as also emphasized in the SDGs. This paper examines how parents of children with disabilities from low income families living in a rural community in India understand and experience the schooling of their child with disabilities. Data were collected through semi-structured interviews with mothers. Findings suggest that mothers greatly valued schooling both for its short and long term benefits; however they were acutely aware of the poor quality of schooling on offer. While parents emerged as strong enablers in supporting their child's schooling they were seemingly devoid of agency to enable their child with disabilities to access meaningful education. 相似文献
10.
The importance of Early Intervention for children with Autism has been established however little attention has been given to the role of the parent and their perspective (Griffin & Shevlin, 2011). Research on Early Intervention has proliferated and innovative research on involving parents as partners has emerged (Carpenter, 2007; Hornby, 2011), however parents’ experiences of assessment, diagnosis and education have received little attention. This study investigated parental perceptions of Early Intervention services for children with significant disabilities. The purpose of this article is to describe how parents experience assessment, diagnosis and education, exploring the potential of utulising a parental lens in grasping these perspectives. It explored parents’ need to negotiate services and the difficulties surrounding their children's education in mainstream settings. Through qualitative, longitudinal, in‐depth case studies, parents (n 6) were interviewed over a fifteen month period. Interviews coincided with school terms. A major point of difference is the presence of parent voice. This research is dedicated to eliciting parents’ voice and exploring how this may influence current understandings of Early Intervention in Ireland. This research suggests that we need to explore what is needed by parents according to those parents, by acknowledging parent voice. Early Intervention and school settings may be a site of reconfiguration of parenthood where mutually, supportive mechanisms may confront the obscurities associated with their role and the fact that they are seldom heard. 相似文献
11.
Wendy Parker Annette Sterr Peter Williams 《International Journal of Disability, Development & Education》2017,64(6):573-595
Families with children with disabilities can feel isolated during school holidays and concerns exist that they face greater difficulties than families of children without disabilities in finding enriching activities for their child. In the context of national policies that encourage integrated play, local service commissioners in England require evidence on what sort of short breaks parents and children prefer. The parents of 99 children with disabilities and 43 children without disabilities attending various holiday play schemes in summer 2010 completed mailed questionnaires. Parents of children with disabilities reported more difficulty getting information, less choice of schemes and further distances to travel than parents of children without disabilities. Although 72% of parents of children without disabilities and 55.5% of parents of children with disabilities stated integrated schemes would be suitable for their child, open text comments provided weaker support. Variety of provision is required to meet all needs and preferences. 相似文献
12.
Richard P. Hastings 《International Journal of Disability, Development & Education》1997,44(4):329-340
Grandparents are important sources of support to children with disabilities and their families. However, there has been very little published research concerned with grandparents’ roles and experiences in relation to their grandchild with disabilities. Existing research is reviewed in the present paper. Although both parents and grandparents themselves report a wide range of supportive activities and increased involvement with the child with disabilities, grandparents may also be an additional burden to families. In particular, parents may find it difficult to deal with grandparents’ immediate and longer term emotional responses to their grandchild's disability. Clinical, educational, and other professionals have an important role to play working with grandparents and facilitating their role as a resource for families of children with disabilities. The implications of the review for research on grandparents are also discussed. 相似文献
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Within special education policy and practice, parents are expected to advocate for their children to receive appropriate special education and related services. However, the majority of parents report feeling disempowered to advocate; families from culturally and linguistically diverse (CLD) backgrounds may feel especially disempowered. Federally funded Parent Training and Information Centers (PTIs) exist in each state to empower historically underserved (including CLD) parents of children with disabilities. In this study, we examined how PTIs educate and empower CLD families through semi-structured interviews with 13 PTI staff members who work with CLD families across five states. The participants emphasized the importance of strategies such as conducting outreach in local communities and developing parent leaders among the CLD families they support. The findings also indicated that PTIs struggle with addressing external, systemic barriers which influence CLD families. Implications for research, policy, and practice are discussed. 相似文献
14.
The perceptions of parents and teachers of 24 children with learning disabilities regarding their children's or students' locus of control (LC) orientation were compared to the LC orientation held by the children themselves. While no significant differences were found between parents and children, teachers were found to perceive in their students with learning disabilities significantly more internally oriented success experiences than the students perceived in themselves. Significant differences in LC orientation were also found between the children with learning disabilities and a comparable group of nondisabled subjects. Implications for both preservice and inservice teacher education are presented. 相似文献
15.
Bi Ying Hu Miranda Chi Kuan Mak Chun Zhang Xitao Fan Jieling Zhu 《International Journal of Disability, Development & Education》2018,65(2):163-182
This study aims to explore Chinese parents’ understanding about the importance and feasibility of quality pre-school inclusion and how these beliefs are affected by their levels of education and the types of disabilities in the Chinese socio-cultural and policy contexts. Findings support parents are highly supportive of the philosophy of inclusion. Both groups of parents of children with and without disabilities have different expectations for what quality inclusion looks like in the six dimensions of inclusion except for professional development and resources. The higher the levels of education, the more likely regular parents agree on all six dimensions of inclusion. Finally, disability categories did not affect parents’ beliefs. Parents of children with multiple disabilities expressed the greatest need for inclusion. Overall, parents’ agreement with the important features of inclusion reflects a greater expectation for quality inclusion and policy-making to make this happen to all young children. 相似文献
16.
《Parenting, science and practice》2013,13(4):317-337
Objective. We argue that, compared to other children with disabilities, parents of children with Down syndrome may experience less stress and more rewards. Design. After reviewing changes in studies examining parenting children with disabilities, we note how specific genetic disorders predispose children to different, etiology-related behaviors, which in turn predispose their parents to particular reactions. We then survey studies of both stress and rewardingness in parents of children with Down syndrome versus children with other disabilities. Results. Parents of children with Down syndrome report less stress and more child-related rewards than parents of children with other disabilities; indeed, parents of children with Down syndrome may feel equally rewarded compared to parents of same-aged typical children. Conclusions. By comparing feelings of parents of children with Down syndrome versus children with other disabilities, we begin to understand which child behaviors bring about which parental reactions. Such information provides both theoretical and practical benefits to professionals interested in parenting. 相似文献
17.
This article describes a therapeutic program for child abusive parents that is psychoeducationally based and is conducted through home visits by trained behavioral interventionists. The immediate goals of the intervention are to teach abusive parents effective child management procedures based on social learning therapy and to modify faulty or excessive expectations these parents have toward the behavior of their children. The general model is discussed as well as criteria for selection of parents for home intervention services, the differences between home intervention with abusive and non-abusive parents and the procedures used in home intervention services. A general discussion is also provided of the various goals and stages through which parents progress. 相似文献
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This exploratory, qualitative study investigated the perceptions of Saudi Arabian parents of elementary school-aged children with learning disabilities with regard to their involvement in their children's education. Guided by results of previous research conducted primarily with Western samples, and using a semistructured interview methodology followed by thematic phenomenological analyses, specific interview topics included parental perceptions of (a) the importance of parent–school partnerships, (b) the means of encouraging a parent–school relationship, and (c) how school practices may affect parental participation. The study involved 13 parents of children in elementary education (ages 7–12 years) diagnosed with learning disabilities. The results suggest several ways to overcome the involvement barriers reported by parents. 相似文献
20.
《Early childhood research quarterly》1998,13(1):27-47
Inclusion of preschoolers with disabilities in programs for typically developing children has a strong legal, rational, moral, and empirical basis. Despite this compelling foundation, however, the desirability of inclusion continues to be debated and acceptable options for inclusive placements are often difficult to find. In this paper, we argue that professionals and parents are often placed in a position in which inclusion must be weighed against other compelling values in making decisions about placements for children. We describe three competing values—high-quality programs, specialized services, and family-centered practices—and demonstrate how in many communities these values and inclusion are difficult to achieve simultaneously. We argue that placement in inclusive settings should be a goal for all children with disabilities, but that placements should also be of high quality, sufficiently specialized, and consistent with family priorities. We conclude with a series of recommendations for changes needed if this goal is to be attained. 相似文献