| 精准医学伦理构建：理念、原则与路径 |
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| 引用本文： | 陶应时,王国豫.精准医学伦理构建：理念、原则与路径[J].科学学研究,2020,38(6):961-967. |
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| 作者姓名： | 陶应时 王国豫 |
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| 作者单位： | 1. 复旦大学哲学学院;2. ; |
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| 基金项目： | 国家重点研发计划;教育部人文社会科学研究项目;湖南省自然科学基金面上项目 |
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| 摘 要： | 精准医学是以基因测序为前提、以数据共享为保障、以全球变化为背景的一种新型现代医学，它的孕生与发展为维护整体的人类健康提供物质基础、信息基础与现实基础。精准医学伦理构建需在分析个人健康和人类健康两者间有机联系与内在逻辑的基础上，形塑“人类健康命运共同体”的伦理理念，遵循保护隐私、共建共享、共责共治的伦理原则，以制定规范、健全培训、加强审查、完善立法为实现路径。本研究是关于精准医学伦理构建的总体方向与关键问题的一种宏观思考。
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| 关 键 词： | 精准医学 人类健康命运共同体 伦理理念 伦理原则 |
| 收稿时间： | 2019-12-20 |
Construction of Precision Medicine Ethics: Conception,Principles and Paths |
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| Abstract: | Precision medicine is one of the new types of modern medicine premised on human genome sequencing, guaranteed by the life medical data sharing, and grounded in the global change (and globalization). Its birth and development provide the material basis, lay information foundation and develop reality for maintaining overall human health. The construction of precision medicine ethics should be based on analyzing the organic connections and internal logical relationships between individual health and humankind health, shaping the ethical conception of “a community with a shared healthy future for mankind”, and obeying the ethical principles of protecting privacy, co-building and sharing precision medicine system, jointly shouldering the responsibility and governance. The paths to carry it out are as follows: to formulate ethical norms of precision medicine, to strengthen the ethical training for practitioners in the field of precision medicine, to promote ethical review and supervision of the entire process of precision medicine, and to accelerate the development and implementation of precision medicine laws and regulations. This research made a macro-consideration on the general direction and key issues of the construction of precision medicine ethics. |
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