Respecting and fulfilling the right of post-primary pupils to consent to participate in trials and evaluative research: a discussion paper |
| |
| Authors: | Lisa K Maguire Bronagh Byrne Susan Kehoe |
| |
| Institution: | 1. Northern Ireland Network for Trials Methodology Research, Centre for Public Health, School of Medicine, Dentistry and Biomedical Science, Queen’s University Belfast, Belfast, UK;2. MRC North West Hub for Trials Methodology Research, University of Liverpool, Liverpool, UK;3. School of Sociology and Social Policy, Queen’s University Belfast, Belfast, UK;4. Playboard NI, Belfast, UK |
| |
| Abstract: | This paper provides an introduction to issues surrounding the participation rights of young people in research and the implications of their growing involvement in research as well as providing a discourse on the ethical implications related to consent. The unique contribution of this paper is that it considers children’s rights in respect to the increasing opportunities for young people to take part in evaluation research. The aim of this paper, therefore, is to acknowledge the growing involvement for young people in research and the implications of ensuring that their rights of participation are respected. Secondly, we will consider the children’s rights legislation and our obligations as researchers to implement this. Finally, we will explore consent as an issue in its own right as well as the practicalities of accessing participants. This paper will postulate that any research about young people should involve and prioritize at all stages of the research process; including participation in decision-making. We conclude by identifying five key principles, which we believe can help to facilitate the fulfilment of post-primary pupils’ ability to consent to participate in trials and evaluative research. |
| |
| Keywords: | Participation school-based research children’s rights informed consent research ethics trials |
|
|
